Information and care services

As the main financier of the Plateforme Maladies Rares, AFM-Téléthon works to maintain recognition of rare diseases as a public health priority, inform patients and the medical establishment and encourage the development of new treatments.

Illustration for article: Finding information

Finding information

In a knowledge-sharing procedure to improve treatment, AFM-Téléthon has helped implement tools providing information on rare diseases.
Illustration for article: Getting help

Getting help

When you suffer from a rare disease, one of its worst effects is that you feel isolated, without receiving any useful information. Today, several structures on a European scale provide help and information to people with a rare pathology.
Illustration for article: The International Rare Disease Day

The International Rare Disease Day

Rare Disease Day is an annual event coordinated by Eurordis at the international level and National Alliance of Patient Organisations at the national level. It takes place every year on the last day of February.