02 May 2018

AFM is turning 60 this year

Illustration for article: AFM is turning 60 this year
Sixty years ago to this day, the creation of the AFM revolutionized the destiny of rare diseases

Sixty years ago, the scientific and medical community did not show much interest for muscular dystrophies. In February 1958, 9 parents gathered together to change their destiny and fight against the diseases killing their children. On April 30 of 1958, Yolaine de Kepper, a mother of 7 children including 4 boys with Duchenne muscular dystrophy, created the AFM, the French Muscular Dystrophy Association, to combat neuromuscular diseases. Today, these three letters are synonymous with victories and innovation for all rare diseases.