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Social innovations

Through Telethon donations, AFM-Téléthon does not limit itself to innovative approaches for treating rare diseases. It also fights so that patients can be involved in society as anyone else. A fight which also leads to innovations in the social sector. As with the treatments, most of these social innovations do not only concern people affected by a neuromuscular disease, but anyone who suffers from a long-term disease and a disability.

Illustration for article: The facilitator: a professional to assist patients

The facilitator: a professional to assist patients

Many pathologies or severe disabilities require a specific type of patient support. The French Muscular Dystrophy Association (AFM-Téléthon) was a pioneer in identifying this need. In 1988, using Telethon donations, it created a new profession to meet this need: the facilitator.
Illustration for article: Home-service: a very useful innovation

Home-service: a very useful innovation

Being a full member of society in spite of the disease means living at home, even with a high level of dependency. On experimenting a home-service solution designed with patients in this case, the French Muscular Dystrophy Association (AFM-Téléthon) has proved that it is not an impossible dream.
Illustration for article: Compensation : from advocacy to right

Compensation : from advocacy to right

By instigating the right to compensation for disabilities in France, the law of 11 February 2005 was an important step forward towards the acquisition of citizenship for people with disabilities. AFM-Téléthon was one of the key players in designing this innovative concept and bringing it into law.
Illustration for article: Family Break Village: to help helpers

Family Break Village: to help helpers

With the treatment, washing and getting ready, meals and moral support, helping a family member suffering from a neuromuscular disease is often exhausting, both physically and mentally. To enable families to rest and relax, the French Muscular Dystrophy Association (AFM-Téléthon) has launched a new concept: The Family Break Village.