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The National rare diseases plan

In 2004, France acknowledged rare diseases as a public health problem and passed a global plan with a view to providing access to accurate diagnosis and appropriate treatment, while developing research. Patient associations took part in drafting and evaluating this plan, which was completed at the end of 2008 and which has been replaced by a second plan in 2011. The French Muscular Dystrophy Association (AFM-Téléthon) contributed a great deal to this.

Illustration for article: The Second Rare Diseases Plan 2011-2014

The Second Rare Diseases Plan 2011-2014

The patients associations that took part in the evaluation of the First National Rare Disease Plan, closed in 2008, campaigned for a second plan to be launched. It was finally launched on February 28th, 2011, during the International Rare Disease Day.
Illustration for article: The First Rare Diseases Plan 2004-2008

The First Rare Diseases Plan 2004-2008

AFM-Téléthon and Alliance Maladies Rares played a key role in the adoption and development of the first Rare Disease Plan that was launched in 2004. This plan is now considered a public health model in Europe.