On November 22nd 2012, the AFM-Telethon received the responsible communication award and a distinction for its 2011 Annual Report, carried out by the agency Kazoar. Awarded by Communication & Entreprise, the largest association of corporate communication professions in France, this award recognises the AFM-Telethon’s approach of transparency and responsibility to its donors and partners.
Since the creation of the Telethon in 1987, the AFM-Telethon has committed to inform donors about the use of their donations and actions and results obtained thanks to their mobilisation.
“An objective that has not changed: Cure; a clear strategy that values general interest and innovation; a permanent pedagogy and the exemplary by proof: it is the backbone of our communication, that has allowed us to benefit from the trust and loyalty of our donors for the past 25 years. The exceptional citizen mobilisation of the Telethon is the foundation of our battle and the motor for the development of innovative therapies for rare diseases,” said Laurence Tiennot-Herment, President of the AFM-Telethon.
A transparency requirement based on:
• a permanent pedagogy to explain the strategy conducted and the results obtained in very complex scientific fields with the aim of enabling citizens to understand the medical revolution in which they play a part through their mobilisation.
• an innovative approach of external control and numerous internal control procedures. Since 2001, the AFM-Telethon is certified by an independent agency, Bureau Veritas, which ensures the compliance of the procedures and management. This certification was renewed in April 2011 for 3 years.
• the publication of its annual accounts available to everyone on the Internet.
• a direct line for donors. In 2011, the AFM-Telethon responded to over 10,000 public inquiries by email or by post.
Photo: centre, Laurence Tiennot-Herment, President of the AFM-Telethon; right, Emmanuelle Guiraud, Assistant Director of Communications of the AFM-Telethon.