The French Muscular Dystrophy Association (AFM-Téléthon) is composed of patients and their families who are affected by a genetic, rare, progressive and severely disabling illness: neuromuscular diseases. In order to fight those diseases, AFM-Téléthon chose to initiate innovative actions and a strategy of general interest that benefits all rare diseases and all persons with disabilities.
The values of AFM-Téléthon are those held by the patients and their parents who are determined to do everything it takes to conquer the disease.
There are about 200 neuromuscular diseases against which AFM-Téléthon fights. Most of them are genetic and rare. To cure them, AFM-Téléthon supports the development of innovative therapies for rare diseases.
Neuromuscular diseases are progressive and severely disabling. AFM-Téléthon develops innovative programs to improve quality healthcare and patients’ autonomy. Patients need to be able to access quality healthcare and to live like everyone else, despite their handicap.